Neurodiversity: To Be or To Have? That is the Question!

Exploring the language of neurodiversity and how to respect individual preferences.

Welcome back! 

As we’ve discussed in previous blogs, language plays a crucial role in how we perceive and understand each other, especially when discussing neurodiversity. 

For this kōrero we are continuing to look into the important and often nuanced topic: the language we use to talk about neurodiversity. Specifically, how do neurodiverse individuals prefer their neurodiversity to be addressed? Let’s explore this with empathy and respect.

Identity-First vs. Person-First Language

When it comes to discussing neurodiversity, there are two primary approaches: identity-first language and person-first language. Both have their merits, and preferences can vary widely among individuals.

1. Identity-First Language: This approach places the condition before the person, emphasising that neurodiversity is an integral part of their identity. For example, “I am autistic” or “She is dyslexic.” Many people prefer this language because it acknowledges that their neurodiversity is a core aspect of who they are.

2. Person-First Language: This approach places the person before the condition, emphasising that the individual is not defined by their neurodiversity. For example, “I have autism” or “He has ADHD.” This language is often used to highlight the personhood and humanity of individuals, separate from their condition.

   
   

Why Preferences Matter

Understanding and respecting language preferences is crucial for fostering an inclusive and supportive environment. 

1. Empowerment: Using preferred language empowers individuals by validating their identity and experiences. It shows that we respect their autonomy and choices.

2. Respect: Language is a powerful tool for showing respect. When we use the terms that individuals prefer, we demonstrate that we value their perspectives and are willing to listen.

3. Connection: Using the right language helps build stronger connections. It shows that we are attentive to the needs and preferences of others, fostering a sense of trust and understanding.

Listening to Neurodiverse Voices

So, how do we know which language to use? The answer is simple: listen and ask. 

When respectfully inquiring with a couple of people in our personal worlds about how they prefer their neurodivergence to be acknowledged, the responses were as follows:

Example 1:  This short audio clip gives the perspective of a fifteen year old male. While the questions may not have framed terribly well, he definitely gives us something to think (and smile) about!

Example 2:  “I am me first and anything else second. I would say, my name is …. and I am neurodiverse, although I would prefer not to say anything about my personality. I would like people to take me for who I am and not look at a label” (Adult female with Autism).

So, here are some tips:

1. Ask Directly: If you’re unsure, and from listening you did not get an idea, ask the individual how they prefer to be addressed. A simple question like, “Do you prefer ‘autistic person’ or ‘person with autism’?” can go a long way. 

2. Respect Individual Preferences: Remember that preferences can vary. One person might prefer identity-first language, while another might prefer person-first language, or they may prefer neither. Respect each individual’s choice.

3. Stay Informed: Engage with neurodiverse communities and stay informed about evolving language preferences. This helps ensure that your language remains respectful and up-to-date.

   
   

Our experience reiterates to us the importance of making the effort to find out, and demonstrates that it is about personal preference - there is no right way other than the way the person identifies.

A Note on Inclusivity

It’s important to recognize that while inclusivity is key, claiming, for example, that “we’re all on the spectrum” can sometimes be offensive to neurodiverse individuals. This phrase can minimize the unique challenges and experiences faced by those who are genuinely neurodiverse. While it’s great to empathize and find common ground, it’s crucial to acknowledge and respect the distinct experiences of neurodiverse individuals.

Linking to the NZ RTLB PLN Kaupapa - Challenges to Connect, Inspire, and Uplift

The following are some practical ways to integrate the NZ RTLB Professional Learning Network's core values into your daily work.

1. Connect: Start conversations about neurodiverse language preferences with your RTLB colleagues. Share insights and create a more inclusive dialogue. How can you keep this conversation alive in your mahi?

2. Inspire: Be a role model by respecting and validating neurodiverse identities. Share success stories and best practices. How can you encourage empathy and respect within your team?

3. Uplift: Use preferred language consistently and encourage others to do the same. Celebrate the strengths and achievements of neurodiverse individuals. How can you create opportunities to highlight their contributions?

Wrapping Up

Language is a powerful tool that shapes our perceptions and interactions. By understanding and respecting the language preferences of neurodiverse individuals, we can create a more inclusive and supportive world. Whether it’s “I am autistic” or “I have autism,” or “I am a mere civilian” (as per our first example 😊), the key is to listen, respect, and empower.

Let’s continue to celebrate the rich tapestry of neurodiversity with empathy and respect. 

Stay curious, stay respectful, and keep making a difference!